164th ENMC International workshop: 6th workshop on centronuclear (myotubular) myopathies, 16-18th January 2009, Naarden, The Netherlands.

193rd ENMC International workshop Pathology diagnosis of idiopathic inflammatory myopathies 30 November - 2 December 2012, Naarden, The Netherlands.

The 193rd ENMC International Workshop brought together 21 researchers from nine countries: Belgium, Finland, France, Germany, The Netherlands, Spain, Sweden, United Kingdom, and United States of America. The group was joined by a patient representative from the Dutch working group of myositis patients. The participants discussed the idiopathic inflammatory myopathies (IIM), that comprise a numb...

171st ENMC international workshop: Standards of care and management of facioscapulohumeral muscular dystrophy.

An ENMC workshop on standards of care and management of facioscapulohumeral muscular dystrophy (FSHD) patients was held on January 15–17, 2010 in Naarden, The Netherlands. Twenty-four participants from eight countries participated. The primary objective was to develop standards of care in the diagnosis and management of patients with FSHD. Recommendations were formulated based on evidence, when...

51st ENMC International Workshop: Nemaline Myopathy. 13-15 June 1997, Naarden, The Netherlands.

170th ENMC International Workshop: bone protection for corticosteroid treated Duchenne muscular dystrophy. 27-29 November 2009, Naarden, The Netherlands.

The first ENMC workshop for bone protection in DMD patients treated with corticosteroids included 18 participants from Europe, USA and Canada. The participants were from diverse backgrounds including Paediatric Neurology, Endocrinology, Metabolic bone disease, Orthopaedics and Medical Physics. The objectives of the workshop were to discuss the problem of vertebral fractures with the following a...

173rd ENMC International Workshop: congenital muscular dystrophy outcome measures 5-7 March 2010, Naarden, The Netherlands.

The 173rd ENMC/TREAT-NMDworkshop on congenital muscular dystrophy (CMD) outcome measures is the 9th CMD workshop, beginning in 1993 with the establishment of a CMD consortium. The workshop brought together 22 clinicians and experts from five countries to advance the implementation of suitable clinical outcome measures and endpoints specific for the CMDs to advance CMD clinical trial readiness. ...